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@ Virtual St. Louis Walk for PKD - Metro St. Louis, NO
The 2020 St. Louis Walk for PKD - Virtual with "10 days. One goal." theme is in full swing in rallying walkers and collecting donations. The Walk for PKD is a 10-day event from October 9-18, 2020. The Walk for PKD is your opportunity to put your passion to end PKD into action! As our signature fundraising event, 100% of donations made to the Walk will go to critical PKD research to help find treatments and a cure. Take the time today to register a team, register individually, join a team, and/or gather team members to register and donate. To register or donate, visit: walkforpkd.org/stlouis.
Hey, St. Louis walkers, let’s have everyone walk on Sunday, October 11, 2020. Pick a time that is convenient for you, your family, and/or your team. If this day does not work with you, your family, or your team, please pick a time and day that works for you and them. Take a picture of you, our family, or your team walking and post it on the PKD Foundation - St. Louis Chapter Facebook page under "Post Walk for PKD pictures here!” Plus post it on the PKD Foundation Facebook page.
10 Days activities: Decide what activity you plan on doing every day during the 10 days to raise PKD awareness and to raise funds for critical PKD research. Some activities could be: Ask 10 people every day to donate, ask 10 business every day to donate, make PKD posters with the message "Donate to walkforpkd.org/stlous to #endPKD" to put in vehicle windows when they are parked outside or in a parking lot, use sidewalk chalk and write the message "Donate to walkforpkd.org/stlous to #endPKD" and ask others if you can write a message on their driveway and 10 days of baking where you will bake and give a dozen chocolate chip cookies to anyone who donated $100+ under your name. Other activities could be: 10 days of biking 10 miles per day, yoga, walking 10,000 steps per day, running X miles per day, knitting, gardening, art, hiking, Segway, and etc.)
HOW THE VIRTUAL WORKS:
Register and donate through walkforpkd.org/stlouis or walkforpkd.org and connect through PKD Foundation - St. Louis Chapter Facebook page and PKD Foundation Facebook page. Once you are registered to walk, you will be sent e-mails and we will post Walk details and videos on both of our Facebook pages including videos for start line ceremony on October 9, mid Walk on October 13, and finish line ceremony on October 18.
The virtual 2020 St. Louis Walk for PKD event and details are located on the PKD Foundation - St. Louis Chapter Facebook page and on the PKD Foundation Facebook page.
WALK FOR PKD ITINERARY - Virtual! 10 days. One goal.
October 9, 2020 - Start line ceremony video from the PKD Foundation at 6:00 PM
October 9-18 - 10 days of activities
October 11 St. Louis walkers lets choose this day to walk. Pick a time that works for you.
October 11 St. Louis Kids set-up and run in the Penney Kid Dash today. Pick a time that works for you.
October 13 - Mid-Walk update at 8:00 AM from the PKD Foundation
October 18 - Finish line ceremony video from the PKD Foundation at 6:00 PM
December 31 Last day for collecting 2020 St. Louis virtual Walk for PKD donations
PKD is one of the most common, life-threatening genetic kidney diseases. Polycystic Kidney Disease (PKD) causes uncontrolled growth of fluid-filled cysts in the kidneys, often leading to kidney failure. Once a person has kidney failure, transplant or dialysis are the only options to treat the damage the disease has caused. PKD patients are in urgent need of treatments and a cure.
There are two types of Polycystic Kidney Disease (PKD): autosomal dominant PKD (ADPKD) and autosomal recessive PKD (ARPKD). ADPKD is more common and affects an estimated 600,000 Americans and 12.4 million people worldwide. Parents with ADPKD have a 50 percent chance of passing it on to each of their children. Approximately 10 percent of the people diagnosed with ADPKD have no family history of the disease, with PKD developing as a spontaneous (new) mutation. Once they have it, they have a 50 percent chance of passing it on to each of their children. The less common form, ARPKD affects approximately 1 in 20,000 children, and often causes death in the first month of life. Only 70% of children born with ARPKD survive the newborn period and one-third of those who survive will need dialysis or transplantation by the age 10.
ABOUT THE PKD FOUNDATION:
The PKD Foundation is the only organization in the United States SOLELY dedicated to finding treatments and a cure for PKD. It was founded on August 20, 1982, 38 years ago. The national office is located in Kansas City, Missouri. The St. Louis PKD Chapter is part of the 60 Chapters across the United States. Visit pkdcure.org for more information about the Foundation and our Chapter.
Our mission is: We give hope. We fund research, advocate for patients and build a community for all affected by polycystic kidney disease (PKD).
Our Vision is to#endPKD
ABOUT ST. LOUIS PKD CHAPTER MEETINGS:
The St. Louis PKD Chapter host POSITIVE monthly online education and support meetings for PKD patients, their families, and caregivers. The St Louis Chapter is organized and run by an ALL volunteer committee. We meet online the second Monday of the month unless there is a conflict, large event, or winter break. We meet from 7:00 PM to 9:00 PM.
The next online Chapter meeting is November 2, 2020, with guest speaker, Dr. Tarek Alhamad, from Washington University School of Medicine, will educate us about "How to Find A Living Kidney Donor". Visit pkdcure.org/chapter/st-louis to register.